Category Archives: Uncategorized

DS — Keeping the Faith & The Music Alive

We belong to The Vineyard Church in Rockville Centre which we affectionately call “Rock ‘n Roll Church.” It’s where Brian and Mike made their first Holy Communion several years ago. Sunday services include a 30-minute worship, or music segment, in which … Continue reading

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DS Awareness: “Smart is as Smart Does!”

We’ve all heard or met book smart people who know an awful lot but seem to have no common sense or ability to apply what they know. Then there is street smart, the ability to survive in the concrete jungle … Continue reading

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Down Syndrome & The Brotherhood

What IS Down syndrome anyway? My Beautiful Young Men have Down syndrome, a genetic abnormality caused by an accidental triplication of the 21st chromosomal pair. Chromosomes, located in the nucleus of each cell in our bodies, are distinct structures made up of … Continue reading

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Down Syndrome is NOT…

The myths that are propagated about having a child with Down syndrome are just that… myths! “A life relegated to caretaking:” At 14, My Beautiful Young Men dress, cleanse, and feed themselves. They get up for school, make their beds, … Continue reading

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Down Syndrome Doesn’t Stop My Young Men From Living Life to the Fullest!

Assistant Middle School Football Coaches NDSS Lobbyists Honor Roll Students Included in general education Wildly Popular Invited to the best parties Friends with all the girls AND the guys The NICEST Guys around Well behaved, NEVER any behavioral problems The … Continue reading

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Down Syndrome Awareness Month 2019!

Never in a million years — or at least 14 1/2 years — could I have imagined what my life would be like today. It is the first of October, the first day of my daughter’s birth month, the 8th … Continue reading

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Whose Name Is It Anyway?

My sister named her first-born son Isaac. It means, “he laughs.” Though not very common, suddenly, that became the most beautiful name I’d ever heard. Nearly 17 years later, I found myself challenged with the task of choosing not one … Continue reading

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Hot Cars, Hotter Kids, Scary Story

A friend once emailed me a slide show of bad parenting moments caught on camera with the caption, “some people just shouldn’t have kids!” My response was… “Thank GOD there was no camera around to capture my worst parenting moments!” … Continue reading

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Do You Have Down Syndrome Too?

Circa 1990, my sister told her young son that there was no such thing as Santa Claus. She’d been perpetuating the “lie” and didn’t want to keep the truth from him any longer. She forewarned his friends’ parents that she … Continue reading

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Thanksgiving Thursday : Being Grateful for the Hardships

They say if the only prayer you ever speak is “thank you,” that will be enough! But, how often do any of us not just say, but genuinely feel deep gratitude? A friend of mine shared a video on FB … Continue reading

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