Author Archives: Maggie

About Maggie

I'm a stay-at-home mother of 3 children including a 10-year-old daughter, the Old Soul, and 6-year-old identical twin boys who've been blessed with an extra 21st chromosome (aka: Down Syndrome). I happily spend my time doing all that I can do -- breaking the proverbial box wide open -- to foster my children's development and then sharing what I learn with you through this blog.

Thanksgiving Thursday : Being Grateful for the Hardships

They say if the only prayer you ever speak is “thank you,” that will be enough! But, how often do any of us not just say, but genuinely feel deep gratitude? A friend of mine shared a video on FB … Continue reading

Posted in Uncategorized | 6 Comments

Thoughts on Common Core from Arne Duncan’s “White Suburban Mom”

I haven’t been blogging much… Too busy helping my children with special needs navigate the new world order of education thanks to the Common Core initiative adopted by NY state courtesy of John King et. al. But, Arne Duncan’s recent … Continue reading

Posted in Advocacy, Arne Duncan, Common Core, educating children with Down Syndrome, Education, evidenced-based practices, Grass Roots Advocacy, NY State legislation, research, Uncategorized | 5 Comments

September 11, 2001 — Looking Back!

I got that text again yesterday morning… from my sister — the one I spent September 11, 2001 with. The tears came, again. And I sent a note to the President of my company (then), who was visiting our fair … Continue reading

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You Know It’s Summer When…

In the movie “Hotel Transylvania” a young boy teases Count Dracula, saying, “Blah Blah Blah Blah Blah” mimicking his famous Transylvanian accent. Drac replies, “I don’t say ‘Blah Blah Blah Blah Blah.’” in exactly the same way the boy had teased.  So, here’s my blah blah blah… … Continue reading

Posted in attention deficit, Down syndrome, happiness, having fun, Uncategorized | Leave a comment

Down Syndrome is Now Just Our Backstory

Somewhere along the way Down syndrome has sort of faded into the background of our existence. Life, as it pertains to The Boys, has stopped being about the role Down syndrome plays in the issue-d’-jour and has become, instead, about My Beautiful … Continue reading

Posted in acceptance, Birth Story, Down syndrome, motherhood | Leave a comment

In Remembrance of Ethan Saylor: Take a Moment to Save A Life

Ethan Saylor’s death is NOT going away… and it shouldn’t!!! Thursday is a Facebook Show-of-Solidarity event in honor of Ethan Saylor, the 26-year-old young man who died of positional asphyxiation on January 12 when shopping mall security guards (moonlighting police … Continue reading

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Robert Ethan Saylor: A Death in the Down Syndrome Community

As I begin to write this I acknowledge it’s going to be a stream of thought — of consciousness and subconsciousness — that will ramble about and around a massively controversial subject that I am torn up over and conflicted about … Continue reading

Posted in Advocacy, challenges, compassion, Down syndrome, Down Syndrome Advocacy, Down Syndrome awareness, NDSS, parent advocate, Segregation | 3 Comments