Category Archives: parent advocate

Robert Ethan Saylor: A Death in the Down Syndrome Community

As I begin to write this I acknowledge it’s going to be a stream of thought — of consciousness¬†and subconsciousness — that will ramble about and around a massively controversial subject that I am torn up over and conflicted about … Continue reading

Posted in Advocacy, challenges, compassion, Down syndrome, Down Syndrome Advocacy, Down Syndrome awareness, NDSS, parent advocate, Segregation | 3 Comments

THANKFUL THURSDAY – Here Comes That Overwhelmed Feeling Again

Isn’t life just too crazy sometimes? Seriously! My life feels overwhelming just now what with my Dad’s illness, the boys’ transition to kindergarten, impending re-surgery for the boys, job possibilities to consider etc. etc. etc. blah blah blah. Right? We … Continue reading

Posted in Down Syndrome Advocacy, Lay Advocate, Long Island Advocacy Center, parent advocate | 3 Comments