Category Archives: Down syndrome

You Know It’s Summer When…

In the movie “Hotel Transylvania” a young boy teases Count Dracula, saying, “Blah Blah Blah Blah Blah” mimicking his famous Transylvanian accent. Drac replies, “I don’t say ‘Blah Blah Blah Blah Blah.’” in exactly the same way the boy had teased.  So, here’s my blah blah blah… … Continue reading

Posted in attention deficit, Down syndrome, happiness, having fun, Uncategorized | Leave a comment

Down Syndrome is Now Just Our Backstory

Somewhere along the way Down syndrome has sort of faded into the background of our existence. Life, as it pertains to The Boys, has stopped being about the role Down syndrome plays in the issue-d’-jour and has become, instead, about My Beautiful … Continue reading

Posted in acceptance, Birth Story, Down syndrome, motherhood | Leave a comment

Robert Ethan Saylor: A Death in the Down Syndrome Community

As I begin to write this I acknowledge it’s going to be a stream of thought — of consciousness and subconsciousness — that will ramble about and around a massively controversial subject that I am torn up over and conflicted about … Continue reading

Posted in Advocacy, challenges, compassion, Down syndrome, Down Syndrome Advocacy, Down Syndrome awareness, NDSS, parent advocate, Segregation | 3 Comments

Splitting Twins In School

My Boys are pretty much on par developmentally and academically with each other such that one does not overshadow the other… Ever! That’s always been the thought process. So, splitting them up because one would talk for the other was never … Continue reading

Posted in Advocacy, Down syndrome, Education, identical twins, school, Uncategorized | Tagged , , , | 2 Comments

If it’s Too Hard to BELIEVE Then Just Suspend Your Disbelief

[Hold on a minute while I climb back up onto my sturdy old soap box that’s mostly been collecting dust over there in the corner this summer.] I have heard and read some very discouraging points of view lately. More, … Continue reading

Posted in Advocacy, Down syndrome, Down Syndrome Advocacy, special needs, Uncategorized | 9 Comments

I’m in a Thankful State of Mind

I find that acknowledging thankful out loud is a lot more A-ffective for me than thinking thankful in my head. I believe I’ve always been a pretty naturally-grateful person. I feel trOOOOLY lucky every single day (even when the proverbial… … Continue reading

Posted in appreciation, Down syndrome, gratitude, thankfulness, Uncategorized | Leave a comment

Exposure Leads to Acceptance

Alex Mahoney lived around the block from me and was one of my good friends until 2nd grade when he and his family moved away.  I played often with him and his younger brother, Vinny. It wasn’t until I was … Continue reading

Posted in Advocacy, Down syndrome, Down Syndrome Advocacy, inclusion, Uncategorized | Leave a comment