Category Archives: challenges

Robert Ethan Saylor: A Death in the Down Syndrome Community

As I begin to write this I acknowledge it’s going to be a stream of thought — of consciousness and subconsciousness — that will ramble about and around a massively controversial subject that I am torn up over and conflicted about … Continue reading

Posted in Advocacy, challenges, compassion, Down syndrome, Down Syndrome Advocacy, Down Syndrome awareness, NDSS, parent advocate, Segregation | 3 Comments

Hope: Yesterday, Today and Tomorrow

How can I wrap being thankful up with a touch of forgiveness and living in the present all in one blog post? That’s a tall order for any closet writer but that’s what I’m feeling right now. Yesterday was a … Continue reading

Posted in acceptance, authentic happiness, challenges, children, developmental delays, educating children with Down Syndrome, gratitude, happiness, school, thankfulness, Uncategorized | 1 Comment

Absence is a Sign of Struggle

Wow!  I had no idea I hadn’t posted here for 2 weeks.  I have to admit, then, that my absence from blogging is a sign of personal struggle!  I’ve barely managed to post twice in as many weeks to 5 Minutes for … Continue reading

Posted in challenges, stress, Uncategorized | Leave a comment

I “LOST” My Child

You remain calm at first.  You think, it’s just another one of those momentary losses of visual contact with one of my kids.  As a Mom, it happens here and there throughout my days and life.  Not so unusual. He … Continue reading

Posted in challenges, Down syndrome, Down Syndrome awareness, parenting, Uncategorized | 4 Comments

Which Sight Words Should We Teach First?

Have you seen this one? Can you understand what the author is saying? “Aocdrndicg to rscheearch  at Cmabrigde Uinervtisy, it dseno’t mtaetr waht oerdr the ltteres in a wrod are, the olny iproamtnt tihng is taht the frsit and lsat ltteer be in the rghit pclae. Tihs is bcuseae the huamn mnid deos not raed ervey lteter by istlef, but the wrod as a wlohe. … Continue reading

Posted in challenges, child development, Down syndrome, educating children with Down Syndrome, Uncategorized | Tagged , , , , | 6 Comments

ThINKING THANKFUL — Back In The Saddle!

Being overwhelmed with the challenges of the boys’ recovery from surgery as well as the health issues of a few of my close family members, over-layed with my inability to accomplish even the most minute task because my children are … Continue reading

Posted in acceptance, challenges, happiness, weight loss | 7 Comments