Category Archives: Advocacy

Thoughts on Common Core from Arne Duncan’s “White Suburban Mom”

I haven’t been blogging much… Too busy helping my children with special needs navigate the new world order of education thanks to the Common Core initiative adopted by NY state courtesy of John King et. al. But, Arne Duncan’s recent … Continue reading

Posted in Advocacy, Arne Duncan, Common Core, educating children with Down Syndrome, Education, evidenced-based practices, Grass Roots Advocacy, NY State legislation, research, Uncategorized | 5 Comments

Robert Ethan Saylor: A Death in the Down Syndrome Community

As I begin to write this I acknowledge it’s going to be a stream of thought — of consciousness and subconsciousness — that will ramble about and around a massively controversial subject that I am torn up over and conflicted about … Continue reading

Posted in Advocacy, challenges, compassion, Down syndrome, Down Syndrome Advocacy, Down Syndrome awareness, NDSS, parent advocate, Segregation | 3 Comments

Splitting Twins In School

My Boys are pretty much on par developmentally and academically with each other such that one does not overshadow the other… Ever! That’s always been the thought process. So, splitting them up because one would talk for the other was never … Continue reading

Posted in Advocacy, Down syndrome, Education, identical twins, school, Uncategorized | Tagged , , , | 2 Comments

Thank God it’s Friday!

Boy, I’m not keeping up at all in the blogosphere. This whole back-to-school/co-chair of the 6th Grade Fundraising committee thing is REALLY time consuming. I’d like to say, “bummer for me!” but I’m feeling grateful that I don’t have to … Continue reading

Posted in Advocacy, appreciation, happiness | Leave a comment

If it’s Too Hard to BELIEVE Then Just Suspend Your Disbelief

[Hold on a minute while I climb back up onto my sturdy old soap box that’s mostly been collecting dust over there in the corner this summer.] I have heard and read some very discouraging points of view lately. More, … Continue reading

Posted in Advocacy, Down syndrome, Down Syndrome Advocacy, special needs, Uncategorized | 9 Comments

Exposure Leads to Acceptance

Alex Mahoney lived around the block from me and was one of my good friends until 2nd grade when he and his family moved away.  I played often with him and his younger brother, Vinny. It wasn’t until I was … Continue reading

Posted in Advocacy, Down syndrome, Down Syndrome Advocacy, inclusion, Uncategorized | Leave a comment

Tis the Season… The Season of CSE Stress!

Two months ago it started; I asked for a team meeting. I needed information as I was considering a summer camp program for The Boys. I requested input regarding what their summer recommendation might look like. I asked what “the … Continue reading

Posted in Advocacy, committee for special education, CSE, educating children with Down Syndrome, Education, inclusion, parenting | Leave a comment